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A-Z Guide: Pediatric Resources for Illinois Families

Posted By Chris Lau, LSW

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Like many parents of children with disabilities, you may be feeling overwhelmed at the quantity of resources available to you, and how to access them.

Use the following checklist of key entitlements and resources for residents of Illinois.

Division of Rehabilitation Services (DRS)

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This organization aims to assist individuals with disabilities and enable them to live as independently as possible. While many services are geared toward adults, children with disabilities may be eligible for a minimum of 240 respite hours per year. To determine if your child is eligible, complete the .

Division of Specialized Care for Children (DSCC)

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This program offers Medicaid Waiver and Non-Waiver programs to help families with children with special needs to connect to services and resources.  and see if your child is eligible for services.

Early Intervention

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If your child is between the ages of 0-3 and is experiencing delays with development, ask your physician for a referral to Early Intervention or .

Home Modifications

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If your child is qualified and enrolled for services through DSCC, contact your child’s Care Coordinator to inquire about home modifications for which you may be eligible. If your child is not qualified for DSCC and you reside in Chicago, contact the Mayor’s Office for People with Disabilities to 

Prioritization of Urgency of Need for Services (PUNS)

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Individuals with developmental disabilities may be eligible for services under the Illinois Developmental Disability Waiver Program. To access these services, your child must be registered in the PUNS database. 

School Enrollment/Individualized Education Program (IEP)

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Starting at age 3, parents and guardians can request an IEP for children and seek to enroll them in school. For information and guidance about your rights as a parent of a child with special needs in Illinois, visit the Illinois State Board of Education website. Several agencies in Illinois offer resources, education and advocacy support related to the IEP process, including the ,  and .

Sports and Recreation

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There are many opportunities for children with disabilities to participate in community sports and recreational activities.

  • Shirley Ryan 嫩B研究院’s Tengelsen Family Foundation Sports for Kids offers many opportunities for children ages 7-17.   
  •  is a program in Chicago that is geared toward those aged 5-21.
  • 's special recreation services.
  • For communities outside of Chicago, .

Supplemental Security Income (SSI)

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Individuals with a qualifying diagnosis who meet the financial criteria may be eligible for supplemental security income, a monthly payment to help cover the costs associated with a disability. The starter kit for children can be found on the federal .

Transportation

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There are several transportation options that your child may be eligible to use. Access is determined depending on insurance and the individual child’s ability to use public transportation.

  • If your child has Medicaid, .
  • If your child has a Medicaid-managed plan such as Blue Community, Aetna Better Health, County Care or Meridian, contact your plan's member services department to request transportation to medical appointments.
  • Pace Paratransit is an option for any transportation needs (medical and non-medical), but your child will need to be assessed for eligibility. .

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If you have additional questions about entitlements and resources available to parents and individuals with disabilities in Illinois, ask to speak to the social worker at your physician’s office, or visit the Henry B. Betts LIFE Center at Shirley Ryan 嫩B研究院.

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Chris Lau, LSW, is a social worker in Outpatient Pediatrics at Shirley Ryan 嫩B研究院 since 2008. She is dedicated to connecting patients and families to services and resources that will maximize their health and well-being.

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