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Rehabilitation Measures Database

Spinal Cord Injury - Quality of Life Pain Behavior [Patient Reported Outcomes Measurement Information System Pain Behavior]

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Purpose

The SCI-QOL Pain Behavior measure assesses self-reported external expression of pain.

Link to Instrument

Acronym SCI-QOL Pain Behavior [PROMIS – PB]

Area of Assessment

Pain
Quality of Life

Assessment Type

Patient Reported Outcomes

Administration Mode

Computer

Cost

Free

Cost Description

Paper copies of short forms are available. PDFs can be requested through emails to sci-qol@udel.edu and tbi-qol@udel.edu

Electronic versions can be found in the NIH Toolbox or the PROMIS app. Either app is $500/yr, and covers up to 10 iPads on a single license. The SCI-QOL and TBI-QOL CATs can be administered directly through these apps. It is important to note that using the app requires you to be physically with the participant or read the questions aloud by interview over the phone - there is no way to send a link to have someone complete the measures at home.

Free electronic versions are available. If your institution has REDCap, the CATs and short forms can be accessed through the REDCap instrument library by searching for the specific measure you want and adding them to your REDCap project. For non-REDCap alternatives, the SCI-QOL and TBI-QOL short forms can be imported into an alternative electronic administration platform such as Qualtrics, SurveyMonkey, Google Forms, etc. Email sci-qol@udel.edu or tbi-qol@udel.edu to request PDF versions.

Diagnosis/Conditions

  • Arthritis + Joint Conditions
  • Pain Management
  • Spinal Cord Injury

Key Descriptions

  • The SCI-QOL Pain Behavior measure is an item response theory (IRT)-calibrated item bank with 39 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or 7 item short form (SF). All items were drawn from the Patient-Reported Outcomes Measurement Information System (PROMIS).

Number of Items

39

Short form: 7

CAT: 4-12

Equipment Required

  • The short form requires the form and a pencil.
  • Please see 'Cost Description' for more information on how to access this measure

Time to Administer

Less than 5 minutes

Required Training

Reading an Article/Manual

Age Ranges

Adults

18 - 64

years

Elderly Adults

65 +

years

Instrument Reviewers

Review completed by Kelsey Stipp, M.S. and Kristian Nitsch, M.S.

ICF Domain

Body Function

Measurement Domain

General Health

Considerations

Do you see an error or have a suggestion for this instrument summary? Please e-mail us!

Spinal Injuries

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Internal Consistency

Traumatic SCI: (Revicki et al., 2009)

  • Excellent internal consistency (Cronbach’s Alpha = 0.99)

Floor/Ceiling Effects

Traumatic SCI: (Revicki et al., 2009)

  • Floor Effect: Adequate: (17% - 26.7%)
  • Ceiling Effect: Adequate: (0.7% - 16.6%)

Mixed Populations

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Normative Data

General Population: The normative data are calibrated on the PROMIS sample which matches the demographics of the 2000 U.S. Census. (Revicki et al., 2009; n = 21,133, clinical samples included: heart disease (n = 1,156), cancer (n = 1,754), rheumatoid arthritis (n = 557), osteoarthritis (n = 918), psychiatric illness (n = 1,193), chronic obstructive pulmonary disease (n = 1,214), spinal cord injury (n = 531), other conditions (n = 560))

Criterion Validity (Predictive/Concurrent)

General Population: (Revicki et al., 2009)

  • Excellent concurrent validity with the self-reported pain intensity rating (r = 0.69)

Bibliography

Revicki, D. A., Chen, W., Harnam, N., Cook, K. F., Amtmann, D., Callahan, L. F., Jensen, M. P., & Keefe, F. J., (2009). Development and Psychometric Analysis of the PROMIS Pain Behavior Item Bank. Pain, 146(1-2), 158-169