Rehabilitation Measures Database
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  2. Spinal Cord Injury - Quality of Life Pressure Ulcers

Spinal Cord Injury - Quality of Life Pressure Ulcers

Last Updated

Purpose

The SCI-QOL Pressure Ulcers instrument assesses difficulties associated with pressure ulcers in individuals with spinal cord injury (SCI).

Link to Instrument

Acronym SCI-QOL Pressure Ulcers

Area of Assessment

General Health
Quality of Life

Assessment Type

Patient Reported Outcomes

Administration Mode

Computer

Cost

Free

Cost Description

Paper copies of short forms are available. PDFs can be requested through emails to sci-qol@udel.edu and tbi-qol@udel.edu

Electronic versions can be found in the NIH Toolbox or the PROMIS app. Either app is $500/yr, and covers up to 10 iPads on a single license. The SCI-QOL and TBI-QOL CATs can be administered directly through these apps. It is important to note that using the app requires you to be physically with the participant or read the questions aloud by interview over the phone - there is no way to send a link to have someone complete the measures at home.

Free electronic versions are available. If your institution has REDCap, the CATs and short forms can be accessed through the REDCap instrument library by searching for the specific measure you want and adding them to your REDCap project. For non-REDCap alternatives, the SCI-QOL and TBI-QOL short forms can be imported into an alternative electronic administration platform such as Qualtrics, SurveyMonkey, Google Forms, etc. Email sci-qol@udel.edu or tbi-qol@udel.edu to request PDF versions.

Diagnosis/Conditions

  • Spinal Cord Injury

Populations

Spinal Injuries

Key Descriptions

  • The SCI-QOL Pressure Ulcers instrument is a fixed-length scale with 12 items that can be administered in its entirety, or as a 7-item short form (SF).

Number of Items

Full: 12

Short: 7

Equipment Required

  • The PDF requires only the printed form and a pencil.
  • Access to the scale is available through SCI-QOL@udel.edu.
  • Please see 'Cost Description' for more information on how to access this measure

Time to Administer

Less than 5 minutes

Required Training

Reading an Article/Manual

Age Ranges

Adults

18 - 64

years

Elderly Adults

65 +

years

Instrument Reviewers

Review completed by Kelsey Stipp, MS and Kristian Nitsch, MS for the Rehabilitation Measures Database Team.

Body Part

Head
Neck
Upper Extremity
Lower Extremity
Back

ICF Domain

Body Function

Measurement Domain

General Health

Considerations

Do you see an error or have a suggestion for this instrument summary? Please e-mail us!

Spinal Injuries

back to Populations

Standard Error of Measurement (SEM)

Depends upon mode of administration (Standard Error = SE)

  • Full Scale (12 Items): Mean SE= 0.31 (Range= 0.21-0.54)

  • 7-Item Short Form: Mean SE= 0.36 (Range= 0.30-0.54) 

Minimal Detectable Change (MDC)

Calculated Using Mean SEM:

  • Full Scale (12-item): MDC= 12.08

  • 7-Item Short Form: MDC= 11.25

Test/Retest Reliability

Traumatic SCI (Kisala et al., 2015; n=189, Mean Age= 42.8, SD= 15.2; Time Post Injury= 7.7, SD=10.5; 42% Paraplegia, 58% Tetraplegia).

  • Excellent: (ICC= 0.79)

Internal Consistency

Traumatic SCI (Kisala et al., 2015; n=189, Mean Age= 42.8, SD= 15.2; Time Post Injury= 7.7, SD=10.5; 42% Paraplegia, 58% Tetraplegia).

  • Excellent: (Cronbach's Alpha= 0.91)

Content Validity

Items were derived from focus groups and interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI care (n=42) (Tulsky et al., 2011).

Floor/Ceiling Effects

Traumatic SCI (Kisala et al., 2015; n=189, Mean Age= 42.8, SD= 15.2; Time Post Injury= 7.7, SD=10.5; 42% Paraplegia, 58% Tetraplegia).

  • Floor Effect: Adequate to Excellent (4.2%)

  • Ceiling Effect: Adequate to Excellent (0.53%)

Bibliography

Kisala, P.A., Tulsky, D.S., Choi, S.W. & Kirschblum, S.C. (2015). Development and psychometric characteristics of the SCI-QOL Pressure Ulcers scale and short form. Journal of Spinal Cord Medicine, 38(3), 303-314.

Tulsky, D.S., Kisala, P.A., Victorson, D. Tate, D., Heinemann, A.W., Amtmann, D., & Cella, D. (2011). Developing a contemporary patient-reported outcomes measure for spinal cord injury. Archives of Physical Medicine and Rehabilitation, 92(10), S44-S51.

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